It’s a purple butterfly zebra kind of life

Here I sit, at quarter to eleven in the morning, in my pajamas with absolutely no intention of getting a shower.  To be quite honest, I'm actually afraid of the shower and how I am going to feel afterward.  Anyone who has experienced chronic pain and the accompanying fatigue will understand...the shower is just a … Continue reading It’s a purple butterfly zebra kind of life

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Out of weakness comes incredible strength 

There is nothing so humbling in this world than receiving the news that the body harbors a potentially deadly disease. The range of emotions is intense as the mind desperately tries to process this new reality.  I can remember sitting in that dark room in the emergency department, trying to maintain a grasp on reality … Continue reading Out of weakness comes incredible strength